The year was 2015 and my Crohn's went tits up essentially. I was really ill and being sick almost every other day (the other end was far less pleasant) so I went for a consultant meeting. That is where the decision was made to put me on the infusion drug Infliximab in the form of Inflectra™.
I'm not going to lie, it sucks. They push this through me currently: every eight weeks but I have an extremely strong feeling that will get reduced to every six weeks. The infusion it's self is two hours but I normally end up on wars for about 5 maybe 5 and a half, depending how quick the nursing staff are to put the canula in!
I recently learnt that the hospital that I go to is one of very few places that let children use this form on infliximab which I thought was pretty awesome. The more people taking this drug, the better everyone feels... or so I thought. Inflecta isn't doing me any favours. I'm still throwing everything I eat back up, I'm still consistently tired and my sleeping pattern is utterly shot. It's gotten to the point that I sleep for an average of 10 hours every 3 days which is horrendous. (I'm a HUGE fan of sleep, so this fact is very upsetting.)
I started Inflectra in December and the first time I had it done, I physically couldn't get out if my bed. The cramps were over whelming and the headaches were out of this world. It got better the second time around but the spring in my step only lasted for 10 days and it gradually went down hill. I started going dizzy every time I stood up, I felt sick all of the time, I didn't enjoy that time of my life.
I've had the Inflectra infusion four times now and it seems to be controlling my crohn's but everything else such as: the sickening feeling, headaches, cramps and dizziness are still recurring factors in my life and I have no idea if I will every get my old life back.
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